Friends help Grantham family make special memories with their poorly son
Friends of a family whose seven-year-old son has a degenerative condition are raising money to enable them to make lasting memories.
Grantham youngster Alexander Needham has Batten disease, an extremely rare neurodegenerative disorder which is life-limiting.
The Needham family are members of the Grantham Disabled Children Society (GDCS) and friends they have made through the group have launched Alexander’s Fund.
They are also raising money for Alexander’s school, Willoughby School in Bourne, which is a special school for pupils with profound, severe and complex learning needs.
Last Tuesday, Ryan Stokes, the six-year-old son of GDCS trustee Micky Stokes, who also goes to Willoughby, completed a sponsored jump at indoor trampoline park Jump Revolution, in Grantham.
Micky said: “Jump Revolution kindly supported the event and let him jump for free. He raised £678.
“Also on Tuesday we held a coffee morning. We had fantastic support and raised a further £500.
“All money raised is being split equally between Alexander’s Fund, so the family can make lasting memories with their little boy, and Willoughby School.”
Money donated to the school will be used to buy specialist equipment.
Micky hopes to raise £3,000. To donate, visit www.gofundme.com/alexanders-fund-willoughby-school