As a thank you to the charity that has provided her disabled son with equipment vital to his development, a mother has raised more than £200 through the sale of wristbands.
Lucy Lowe’s one-year-old son Reggie has the rare genetic condition Prader-Willi syndrome, which affects one in every 15,000 children born in England.
The syndrome is caused by a genetic defect on chromosome number 15, and affects Reggie’s development including his ability to support himself, while he is also at risk of suffering breathing difficulties in the form of obstructive sleep apnea.
However thanks to the assistance of Portage, a charity which carries out home visits for those needing early years support and specialist equipment, Lucy has seen a vast improvement in Reggie.
She said: “They develop his learning through play. He struggles to sit up but he was so interested in the equipment Portage brought the other day that he managed to stay sitting up for an hour.”
Many of Portage’s toys and activities encourage sensory learning, and the equipment is shared so that as many families as possible can benefit.
“It’s great having them in the area, but it can be a bit of a postcode lottery when it comes to support like this,” adds Lucy.
This is what made her decide to raise money for the local branch, collecting £224 for Grantham Portage from the sale of wristbands and keyrings.
“They do such a great job, and have made a big difference to Reggie. I wanted to do this to say thank and let everyone know about their great work.” At the same time Lucy hopes the bands inscribed with both Reggie’s name and Prader-Willi, will raise awareness of the condition.
For more details on the National Portage Association, visit www.portage.org.uk